Should my child with Dup15q Syndrome wear a Medical ID?

While it's a personal choice for your family, wearing a medical ID is strongly recommended for children with Dup15q syndrome. 

Because the syndrome involves complex needs, a medical ID can "speak" for your child in an emergency when you might not be there or are unable to provide details yourself. 

Why is it particularly important for Dup15q:

• Seizure Management: Over 50% of individuals with Dup15q develop epilepsy. If a child has a seizure in public, a medical ID alerts first responders to this condition and may include instructions for "rescue" medications.
• Communication Challenges: Many children with Dup15q have Autism Spectrum Disorder or speech delays. An ID can alert others that the child is non-verbal or may not respond to commands in a typical way.
• Medication Sensitivities: Individuals with chromosome 15 duplications may react differently to certain medications, such as SSRIs or have severe allergies that need immediate attention.
• Wandering Risk: Given the high prevalence of autism, some children may "bolt" or wander. An ID with your contact information (ICE - In Case of Emergency) is a vital safety tool. 

What to include on your child's medical ID:

Medical professionals suggest prioritizing information in this order: 

1. Your Child's Name
2. Diagnosis: "Dup15q Syndrome" (and "Epilepsy" or "Autism" if applicable)
3. Key Medical Needs: e.g., "Non-verbal," "VNS Implant," or "Drug Allergies."
4. Emergency Contact: "ICE: Mom [Phone Number]." 

Options if your child won't wear a bracelet:

If sensory issues (common in Dup15q) make a traditional bracelet difficult, consider these alternatives: 

• Silicone bands: Often softer and less "itchy" than metal.
• Shoe tags: Velcro or metal tags that attach to sneaker laces.
• Medical ID necklaces: Sometimes better tolerated than wristwear.

Please consult a medical professional before engraving information on your child’s medical id.